Angela Chaves | President
Federacion Colombiana de Enfermedades Raras

Angela Chaves, President, Federacion Colombiana de Enfermedades Raras

My Life experience with a Rare Disease, specifically with Leukodystrophy, the detailed study of the
problem and my social commitment, allow me to lead projects related to this issue. My goals are
to transform the reality of those affected by Rare Diseases in Colombia and Latin America, working
hard on the visibility, education and in the Knowledge Management as well as their impact as a
social phenomenon, besides defending the rights of those affected by rare diseases.

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