Coordination of Rare Diseases at Sanford

The Coordination of Rare Diseases at Sanford registry is a national and central registry of individuals of any age who have been diagnosed with a rare disease (undiagnosed individuals are also eligible for enrollment).

The registry holds basic contact and diagnostic information on those who agree to enroll. Any researcher with the appropriate approval can then request information from the registry that might be helpful to the research they are conducting.

By enrolling in CoRDS, participants who qualify will be notified of any opportunities to participate in clinical trials and other research opportunities.