WORLD ORPHAN DRUG CONGRESS USA WEBINARS

 

Rare Disease Clinical Development: The Future is Here

 

Aired Wednesday, June 3, 2020

 

Rare disease patients face many challenges when participating in a clinical trial. Historically, clinical trials have been designed without the consideration of patients, resulting in a research paradigm that is archaic and outdated. By adopting a patient-focused mindset we can reduce the burden of clinical trial participation by designing clinical trials that are more feasible and realistic for patients.

Utilizing a mobile health platform allows patients to participate in clinical trials from their home, with clinical trials being brought directly to a broad diverse group of patients, as opposed to requiring patients to frequently travel great distances to a clinic. Coupled with broad data insights, we can better identify patients, understand patient pathways, and monitor patients long-term safety.

 

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