Romina Ortiz | VP Policy & Patient Advocacy
Rare Genomics Institute

Appearances:

Day Two @ 14:20

Harnessing patient advocacy in the effort to accelerate precision medicine discovery and development

•     Rare disease: how the burden is an obstacle to patient engagement and how patient advocacy can overcome it
•     Patient privacy and how to empower patient advocates and caregivers to champion genomic research
•     How pharma can build stronger relationships with rare disease and precision medicine foundations