Richard Stephens is a survivor of two cancers and a heart condition. He has participated in four clinical trials and nine other studies. After successful careers in local government and education, he now leads the National Cancer Research Institute’s Consumer Forum, who are 91 experienced and trained patients and carers sitting on the NCRI’s UK-wide clinical research groups and other workstreams.
As a patient advocate, Richard helped found the AllTrials and useMYdata campaigns, and is one of the founding Editors-in-Chief of BMC’s open access Journal of Research Involvement and Engagement, the world’s first academic journal on that theme.
He was the patient representative on the Independent Cancer Taskforce that produced the national cancer strategy for England, and works with policy-makers in the UK and in Europe. Richard serves on strategic groups including Genomics England, Cancer Research UK, NIHR, MHRA, MRC, HRA and ABPI. In his spare time he studies acronyms.