National Alliances for Rare Diseases

Patient organisations of single diseases or groups of diseases have joined together in several European countries to form alliances or federations. The World Orphan Drug Congress recognises the incredible value and importance they play in advancing the Rare and Orphan Drug sector.

At World Orphan Drugs Congress 2011 we have already confirmed participation from the following alliances and we aim to have all major Alliances in attendance at this November’s congress.

Alliance	Country	Website
Rare Diseases Organisation Belgium (RaDiOrg)	Belgium	www.radiorg.be
Canadian Association for Rare Disease (CORD)	Canada	www.raredisorders.ca
Rare Disorders Denmark	Denmark	www.raredisorders.dk
Greek Alliance for Rare Disease (PESPA)	Greece	www.pespa.gr
Federazione Italiana Malattie Rare (UNIAMO)	Italy	www.uniamo.org
Alliance Maladies Rares - Suisse (ProRaris)	Switzerland	www.proraris.ch
Rare Disease UK	UK	www.raredisease.org.uk
Aliança Portuguesa de Associações das Doenças Raras	Portugal	http://aliancadoencasraras.org/
Nacgenetic	Russia	www.nacgenetic.ru
Rare Diseases Sweden	Sweden	www.sallsyntadiagnoser.se